This page will be full of resources related to EDS, connective tissue diseases, dealing with chronic pain, and all other issues that can come with it. Most resources will be health related.
As Miss-Diagnosed is a new website, I am busy tracking down the best, most useful, and most reliable information I can find. I want this website to be a reliable and trustworthy resource for people with EDS, and their family or friends. Please subscribe to get notified when new resources are added.
A lot people with connective tissue diseases have difficulty with their hands. Mine are so extremely hyper mobile that it is hard for me to do anything simply. Typing this right now causes my fingers to sublux out of joint and bend in unnatural positions, and after a few sentences, my joints get extremely sore and inflamed.
To keep the hypermobility to a minimum, I use finger splints. I got mine from a hand therapist who measured my fingers for accuracy and I tried on many different sizes to get the right fit.
Each ring has multiple ways you can wear it, each side a different size, so in case of swelling or cold, you can flip it around to suit your finger size.
I only have experience with the Oval-8 Brand, but plan on making my own stainless steel splints very soon, from a tutorial I will link below.
They are hand-made by a jewler from upstate New York. She creates every splint and polishes them to a pristine shine. I am a huge fan of her work, and hope to purchase mt splints from her very soon after a consultation.
She created a PDF guide on how to create finger splits, an easy, DIY tutorial
If you do decide to give these a go, let us know how it goes, document it in a video or blog post with photos! I plan to do a video in the future about my go with this tutorial, but I am not the best with tools and my hands are garbage, so I plan on just purchasing directly from Zebra Splints after my trial.
TO BE CONTINUED
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