There is constant research happening allover the world for Ehler’s Danlos Syndrome. It is mostly not understood, and what is understood about it is minimal. It can be hard for a patient suspected of having EDS, or one with a diagnosis to get treatment that actually helps, and most of the time it is up to us alone to fight this disease and treat it.
The major research that is happening with EDS currently is around diet. There are some studies showing that specific nutrient depletion is a major
Nutrition is a very important part of treatment for Ehlers-Danlos Syndrome. This is an older but very interesting article.
a Pharma Nord (UK), Telford Court, Morpeth, Northumberland NE61 2DB, UK
b School of Biology, King George Vl Building, Newcastle University, Newcastle upon Tyne NE1 7RU, UK
c Department of Nutrition and Dietetics, Kings College London, 150 Stamford Street, London SE1 9NN, UK
“We are urgently trying to raise £250,000 for research to look at the effects of changes to diet on the symptoms of hypermobile EDS (hEDS).”
Diet, Recipe, Meal Plan, Nutritional Resources
This page will be a continual growing resource for information on diet and EDS and related issues and recipes. Sign up below to get word when it is updated, and get access to the subscriber library where you can download all the free resources, included a medical planner.