If you’re here you are probably, a zebra, suspected of being a zebra, or you love a zebra.
WTH is a zebra?
At some point in the medical world, when students learned the basics of diagnosing they were told ‘when you hear hooves, think horse, not zebra’. The most likely reason for the symptom is usually the most common diagnosis.
People with rare illnesses and conditions are those zebras. We have been told we are horses for so long, a lot of us were starting to think we were crazy, and the people around us most likely thought we were hypochondriacs.
This website is for zebras, specifically zebras of the connective tissue disease variety. There are many connective tissue disorders and diseases, and the one I have and will write about most often is Ehler’s Danlos Syndrome, Hypermobility Type.
You don’t need a diagnosis to hang
Not everyone is fortunate enough to have a medical team that understands connective tissue disorders. And not all who suffer are fortunate enough to get an actual diagnosis. In fact, a diagnosis can be very hard to get for most.
This website is for you if you are concerned about having hEDS, or another CTD, even if you’ve never seen a doctor about it. You are welcome here, and I hope you can find valuable resources that will help you.
May I suggest starting with Resources if you are looking for new ways to manage your condition and all of the exciting comorbidities and other joyous side effects it brings.
Maybe you are a family member or other loved one and want to learn how to help your person out?
Want to learn tips on Pain Management?
I hope you can find something to help you in these pages. I know I wish I had something similar to this when I got my diagnosis. I want to be that useful resource I needed.
Please reach out if you have any questions or suggestions, or if you want to tell your story, I will be highlighting readers’ story and experience with EDS and Hypermobility in future topics.
You may email me or publish a comment on any of the blog post pages.